Dying for new lungs: Life with cystic fibrosis - KNOE 8 News; KNOE-TV; KNOE.com |

Dying for new lungs: Life with cystic fibrosis

Posted: Updated: Nov 30, 2012 11:10 AM

JONESVILLE, La. (KNOE 8 News) - A breath of fresh air is something most of us take for granted, but for those with cystic fibrosis, every day is a constant struggle with coughing, breathing treatments and keeping food down.

When her son was just a toddler, Angel Rider faced every parent's worst nightmare.

Doctors said her son Skylar was slowly dying, his lungs filling up with mucus. He suffers from Cystic Fibrosis and at 19 years old his lungs are so blocked up he can barely breathe.

"The medication, the breathing treatments, the hospital stays,its become our new normal, " says Angel.

Her son Skylar's condition has gotten so bad he is constantly coughing. In September, he was told he'd die within a year with out a new set of lungs.

"To have to place my child's life in someone else's hands; its really hard for me to do," says Angel.

But Skylar is just excited to finally get some new lungs.

He says, " I'm pretty excited and I'm ready to get it done. I'll be able to do more stuff."

Skylar's mom, dad and step mom have worked hard to keep his life normal, even if it means packing up loads of gear to get to the duck blind.

That means coolers full of medications and antibiotic IV's, as well as two tanks of oxygen are loaded up on the boat each hunting trip.

But David Lucas says it's all worth it because it's Skylar's passion.  Anything goes for his son.

"That's what dads do. If he wants to do it, we're going to do it," says David.

He's even been hooked up to the IV at the duck blind.

A brave young man, not afraid of the surgery, but more afraid of what could happen after.  He's afraid his body will reject the one thing it needs the most.  

Skylar's family will travel with him to New Orleans during his transplant. They also will live in the city for at least three months while he recovers, renting an apartment and rotating watch between the three of them. While the surgery is covered by insurance, this added cost of living is not, and the family is afraid they will struggle.

But, his family will get through with their faith, and believe that Skylar will be a testimony to others.

After surgery he plans to go to ULM, and then the sky is the limit for his dreams.

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